Tuesday, January 13, 2015

New Forum is Online :)

I may take absolutely NO credit for this one... but the new forum is online!!! 
Thanks to my lovely survivor M and her husband A, we now all have a forum again.

What a lovely start to 2015!
So come help us making it a vibrant place to share stories and receive comfort and support.

Love and Thanks to M and A


Monday, November 24, 2014

I hate myself for going on Yasmin

I have had a terrible experience with Yasmin. I started it in September this year (2014). Before this I was on Levelyn ED since 2008.

I decided to switch to Yasmin because of the so called benefits such as clearer skin, lighter periods etc. When I asked my doctor if he could prescribe this pill he did not hesitate at all. He didn't ask me any questions about my health or whether I had a history of anxiety or bloods clots or anything. This made me believe that this pill wouldn't be so bad. I assumed that if it had bad side effects he would have told me. I soon learned how wrong I was. 

As soon as I began taking Yasmin I was very thirsty, dehydrated all the time. I thought perhaps I was not drinking enough water. Note that I only ever drink water and ONE cup of coffee a day - I do not drink much alcohol, except maybe one glass of wine a month, nor any soft drinks. No matter how much water I drank I could not rehydrate myself.

I had a feeling that the dehydration was the result of the Yasmin but I ignored it as I did not think it was anything major. After a couple of weeks I no longer felt dehydrated. Instead, I begun feeling anxious and with this I had diarrhea. In the past, I have had very mild anxiety with diarrhea (I now believe this is from my other birth control pill) but it was never this bad. I was not sure if it was the diarrhea causing the anxiety or the other way around. At first it happened every couple of days and on weekends when I was catching up with friends. I thought this was just me being silly so I took gastro-stop (anti-diarrhea medication) and ignored it. After about a month, I was waking up with diarrhea every morning which continued into the day and would re-occur at night. I was having full on panic attacks for absolutely no reason at all. I thought I was going crazy. I could not eat with fear of going to the bathroom and lost weight.

Eventually it all got so bad and I started doing research on Yasmin. I worked out that it was the Yasmin that was making me like this. I decided it was time to stop. That was when everything went down hill.

Monday, October 20th, this year was my first day without Yasmin. I was still feeling somewhat anxious but I was happy that I stopped taking Yasmin and was looking forward to getting back to normal again. On Tuesday I felt worse, having a panic attack at work. When I got home from work I had terrible anxiety and diarrhea. On Wednesday, I felt even worse and left work early to go home. I thought that perhaps I had gastro or a stomach bug (it was this bad).

On that Wednesday everything changed.

Once I got home I had a horrible panic attack and it lasted for hours. I had chronic diarrhea and could not even have a sip of water without going to the bathroom. I was also nauseous. My entire body was trembling and my heart was palpitating and felt as though it was going to jump out of my chest. I had never felt like this before, EVER! I was rushed to the emergency room and put on a drip immediately. I had every sort of test performed on me imaginable. All of my tests came out perfect. The doctor told me I was perfectly fine and that I probably had a bug, to drink lots of water and I would be fine. I told him that I had stopped taking Yasmin and done research on this - I asked if this was the withdrawal symptoms of stopping Yasmin. He said no.

The next day I felt slightly better but as it got later in the day I was exactly the same again. And, once again I was rushed to the emergency room. I had more tests done and they told me I was fine and probably had a bug. I told the doctor about the Yasmin and he ignored me. I was sent home after the tests came back fine and I had a drip as well as morphine to calm me down.

I have not been in the hospital since then but my symptoms have not really gone away. I admit that I am better than I was but to this day (it has been almost one month) I have had diarrhea and some anxiety daily. I have seen a doctor about this TWICE. on the first occasion he told me this was not the result of Yasmin. He said the symptoms I was having were too severe to be related to Yasmin. On the second occasion, he told me that MAYBE this was the result of Yasmin but this was "rare". He said I would be fine after another week. He was wrong.

I have no idea what to do. I spend hours everyday crying and have had thoughts of ending my life. I cannot enjoy the things I used to enjoy and I hate myself for going on Yasmin. I refuse to take any other pills or to put any other chemicals in my body. I feel like I will never get better. I feel like there is something wrong with me even though I know Yasmin is the root of my problems. I know it has only been just under a month but how long will this last? I have been taking various vitamins and minerals but nothing seems to help.

I hate that doctors won't admit that we are suffering from Yasmin side effects. It's not fair.

I have days where I am positive and feel like I will be fine. Then on other days I feel like I am just getting worse all over again. I don't know how to help myself and its not fair that I am putting my family, friends and boyfriend through this. I have had thoughts of breaking up with my boyfriend so he doesn't have to see me like this.

Any advice will really help and I would really appreciate to hear some success stories from women who have experienced similar symptoms and recovered.

Thank you.
Adelaide, South Australia

Thursday, October 2, 2014

Forum is MIA

Hello all,
I am sure some of you have noticed that the Yasmin and Yaz Survivors forum is not available at the moment. I have no idea why this is and is trying to figure it out.

If you want to share your stories in the meantime PLEASE email them to yasmin_yaz@live.com and I will add them to the blog. Please make sure you put in the title "For Blog" so I know I can add it.

Love and support to all.

Tuesday, January 28, 2014

Birth Control Side effects (just a small list, nothing to worry about)

Birth control is a subject that has become a mission bigger than myself... I feel a need to spread the word to everyone I speak with and I wish someone could have shared with me ten years ago what I know today... But on the other hand if someone would have done that - I would not have been here today, trying to work so hard for it.

Birth control in the form of IUD, Pill, Implant, Shot, Ring or Patch are a hormonal form of birth control. They are accepted as the NORM by many; including our parents, friends and doctors and are not questioned enough. What we learn about them are the so called benefits and not side effects - and in many cases the side effect is looked upon as that 1-something percent chance of getting pregnant... (Off course getting pregnant will change your life forever and I am not trying to hide that...) but there is so much more than that. So much that not many speak about, or even acknowledge as being related.

More often than NOT are our symptoms ignored, laughed at, or treated with medications that most often fail. Why, I do not know - but I am sad that it has to be that way... there are so many young wonderful women out there that need the support that are left alone to think that it is all in their heads.

I am here to tell you that it is NOT in your head - your symptoms are very much real and are related to hormonal birth control, (or hormonal treatment during menopause if you are at that stage in your life):

  • Hair loss
  • Heart Palpitations
  • Vision blurres
  • Astigmatism
  • High Blood pressure
  • Allergy reactions
  • Sinus problems
  • Vaginal Dryness
  • Depression
  • Anxiety
  • Panic attacks
  • Insomia
  • Symptom of Hypothyroidism
  • Low tolerance to carbohydrates
  • Poor nutrition absorbtion
  • Diarrhea 
  • Dizzyness
  • Alcohol and/or Caffeine sensitiveness
  • Feeling faint
  • Weight Gain
  • Weight Loss
  • Low or no sex drive
  • Spotting in-between periods
  • Irregular Bleeding
  • Cold sores
  • Low immune system
  • UTI
  • Memory problems
  • Bloating
  • Mood swings
  • Migraines
  • Head aches
  • Weepiness
  • PCOS
  • Sensitive to the sun
  • Nervousness 
  • Chronically tired
  • Changes in skin 
  • Muscle cramps or pain
  • Heart attack
  • Stroke
  • Blood clot
As you can see most symptoms have nothing to do with your reproductive tract (vagina, uterus, menstruation)... and they may be overlooked by yourself even, as a symptom of your birth control method. And if you suspect that it is linked you must prepare yourself that your suspicion might be dismissed by the doctor or gynecologist. You must listen to your body! Taking beta blockers, anti depressants, and/or use Rogain shampoo will NOT treat your real underlying issue, only hide it - if you are lucky - and then you should also hope for no side effects of this options. The only way you are truly going to get rid of this is to get off the hormonal birth control, and by that I mean GET OFF, not try another one, and restore your body's natural hormone balance; which could be a trip to hell and back but worth the ride in the end!

Your health comes first! It is really that simple. Without your health in tact you cannot care for your loved ones in the best possible way. Take care of YOU first! If you are taking hormonal birth control you should really sit down and ask yourself if it is worth the risks when there are so many other available options out there that does not include hormones when it comes to birth control...

Tuesday, September 3, 2013

A 28-day cycle

Are you also one of those women who were convinced to go on the pill because your cycles were not regular?! It seemed so natural back then, didn't it?! And not to say - easy: Just pop a pill a day and you were good to go... right?! 

Well, as we have learned - a pill does not fix it, just hides it... forces your body to doing something else even if it wasn't designed to do so.

Funny thing is that there are things you can do to assist in regulating your cycle to follow that "desired" 28-day cycle. Natural things... Let me tell you how:

This approach is for anyone that is trying to regulate their cycle for any reason. (A regular cycle is something good because it helps our bodies to maintain a healthy natural balance of hormones). And by saying regular it is when you have your cycles without any traumatic symptoms...

What else in this world is also working on a regular cycle?
- You guessed it - the beautiful, mysterious Mr. Moon!!
So there is something to the moon and the fertility of women. And you thought it was an old tail, didn't you?! Ok, you might think it is absolutely ridiculous that a moon can effect your cycle but think about it: The moon can change the flow of the earths waters; called the tides.. why not our cycles?! Ok, ok.. there may be no 100% proof, but the idea is highly interesting! (and I don't think the BC pill was a 100% proof thing either).

New Moon to Full Moon
This is considered day 1-14; where a new cycle starts for the moon. So it should do for you as well. It marks for a new beginning. When there is a new moon you should have your period. (Day 1 is the day you get your period).

Now, the Full Moon on the other hand.. What many stories we hear about that, especially now when the vampire movies and series are so popular. But if you go based on this, Full Moon is baby-making-time! That is when women ovulate naturally.

Full Moon to New Moon 
This is considered day 15-28/29/30 Your body is either taking care of a new baby or is re-generating to start the whole process again in a few weeks. As you get close to the end you will feel the water retention and bloating just before the period - just like those tides we were talking about...

Ok, what do you do with this knowledge? 
So.. There are these two natural oils you can take to assist in this adaptation. Adaptation to the moon and the natural flow of our cycles. It is simple, it is natural, and it is a shame this is not taught to women everywhere!

New Moon to Full Moon - Take Flaxseed oil 

Full Moon to New Moon - Take Evening Primrose oil  

In other words you switch with the changes of the moon. You can google for moon phases to make sure you are following the correct cycle or get a calendar that would mark it. I got an app called MOON and it notifies me when there is a new moon or full moon :)
These oils should preferable be organic.
Amounts? You have to try what works for you...

I use the flaxseed oil in my veggie and fruit smoothies or on my salad every day the first phase. Then with EPO I take capsules but can be very well administrated by puncturing a capsule and put the content on your skin!

Even if your period does not follow this cycle currently you can still try this and observe how your cycle will change slowly to adapt to the natural cycle.

Good Luck!!
Have you tried this - please comment!

Monday, August 26, 2013

Sweetening the Pill Documentary

You and me... both the same... we took the pill... we got ill...

Sweetening the pill is a book just released by Holly Grigg-Spall bringing awareness to readers everywhere about the pill. Now a documentary is in the making!!

Want to participate spreading the word and educating the world?? Contact Holly or Helen by using the information in the image below. (Need a PDF version, email yasmin_yaz@live.com with "Sweetening the Pill" as title). TOGETHER WE CAN MAKE AN IMPACT

Tuesday, July 30, 2013

Survived bi-lat Pulmonary Embolism and DVT Caused by YAZ

Thank you, for keeping the message board and blog going. By simply being a presence on the internet you keep the dangers of these drugs available for people to see. Woman need to be educated on these drugs and you're helping so many.
I'm in the middle of a YAZ lawsuit and I'd like to share my story in the hope that someone can relate to it and find a little solace knowing they are not alone. Also, my blog has become a place specifically where women can anonymously share information and discuss their experience (and intense frustration) with the YAZ MDL lawsuit and I hope others will find it useful. 
My Story. . .
I had been on hormonal birth control pills for 10+ years and besides the headaches and moodiness that came along with PMS, I never had problems. A few months before my wedding and just after my 31st birthday, I switched to YAZ. At the time I was a healthy, active non-smoker who ran and did yoga nearly every day.

On a Saturday morning in August 2010 I was shopping with a girlfriend and started feeling out of breath. Each time we got back to the car I felt like I'd just run a mile. Work had been stressful lately, so I attributed the tightness in my chest to that. It wasn't until I nearly passed out that I knew something was wrong. My friend took me to the ER where my husband met us. Again, we just thought I was having a stress induced panic attack or it was a pre-cursor to a migraine. It took several hours and a CAT Scan to confirm that both my lungs were filled with marble sized blood clots. I was immediately started on blood thinners and admitted into the MICU. I stayed in the hospital for a week.
A full blood panel concluded that I have no clotting disorders, so the only known cause of the PE (and DVT which they later found) was the YAZ birth control pills I had been on since May 2009.

I'm one of the lucky ones. I'm alive, although according to my doctors, I shouldn't be. The worst part about having had major blood clots is that they seem to be the gift that keeps on giving. I'm still on blood thinners nearly 4  years later and have been advised to stay on them for life. The fear and anxiety of another episode is always present. I've been to the ER a few times because of similar PE symptoms that turned out to be false alarms – each visit leaves me in tears; it's so frustrating to be held captive by the fear of having another clot. 

Currently, I am part of the YAZ MDL lawsuit. Settlements are being discussed and it doesn't look like any of the lawsuits will actually go to court or that Bayer will be taking YAZ or its sister drugs off the market any time soon. My hope is that the pending lawsuits are enough to convince women to question their use of birth control pills containing Drospirenone. I believe that hormonal contraceptives are a great option for many women, but it's important to educate yourself and make informed decisions, because the risks can be deadly.
Best wishes,

Visit Mrs. T's Blog HERE

Editors note: The overall message of the Yasmin and Yaz Survivors Group is to stay away from synthetic hormonal contraceptive due to the many risk that may or may not inflict upon your life but we wanted to leave Mrs. T's own words in this blog post because that is what this is for... to share your own story and thoughts. 

Friday, July 26, 2013

Two Surgeries thanks to Yasmin and the comforting words from my Doc

I went on Yasmin in 2005 and thought I loved it at first...
Then, I started getting headaches all the time, strange paresthesia sensations in my hands. My heart would skip beats, and I eventually started getting stabbing pains every once in a while in my chest. Couldn't handle hot weather in the summer, and actually had heat exhaustion twice.

I Never thought it was my pill.

Then I started to see the commercials about Ocella being bad for you. So I called my doctors office to see if I needed to change pills. They were not concerned and told me the risks are the same for all pills. So I was like okay, I guess I will stay on it...

Well, I just didn't feel right about a year later and just stopped taking my pills. See; what the doctor doesn't tell you is that this pill has a diuretic in it. One that alters your potassium levels. Well, potassium is kind of important for muscle function, nerves , CLOTTING factors, oh yeah and THE POLARIZATION OF THE HEART. So that is probably why my heart was skipping beats and I was having anxiety. So after being on a diuretic without my knowledge for five years, what happens when I abruptly stop?

- My blood pressure went through the roof, and I started having intermittent claudication when I walked. So I went to the Doc to make sure I didn't have a clot, and my blood pressure was 140/104. I usually run 118/68! Hello rebound hypertension! Thanks Yasmin!

All of my problems were caused by electrolyte imbalance due to diuresis. I was pretty much dehydrated for FIVE years. After coming off, my body wanted to keep every bit of fluid that it could. I have also had two surgeries on my reproductive organs in two years. Since Yasmin took my progesterone and threw it out the window, I ended up with uterine polyps that had to be removed. They are caused by an over abundance of estrogen. So girls, avoid soy and its isoflavones!

The reason this pill has a higher clot risk is not rocket science. It's a little something called Virchow's Triad. Dehydration(the diuretic) + clotting disorder(potassium alteration)+ blood vessel injury = DVT. The FDA should know better! Are they trying to kill people? Yasmin gave us ladies 2 out of 3 of the risk factors for clots. Where most pills probably only give you one of the factors. That is a huge difference.

Fast forward two years. Things are better, but still not back to where I was before. It is a long and painful process, and I still get acne from time to time, which I never had before this pill. I am no longer on ACE inhibitors for blood pressure and my body finally started to regulate itself again. I don't eat anything processed, and I had to learn to be patient. I just wish I had known what was really in this pill before my Doc gave it to me. Had I known about the diuretic I would have said no way! Good luck to all the ladies out there just now quitting this pill. You are not alone! I only was able to put all the pieces together once I started school for nursing.

I am now an angry girl that hopes she can still have kids one day. We'll see...

On Yasmin 4 years 

Thursday, July 25, 2013

My sister asked me what birth control pill I was on

My name is Maria and I am from Romania. Thank you so much for having the initiative to create this blog. I have discovered it as Yasmin almost ruined my life.
I have been taking Yasmin for 8 month now and about 4 months ago everything changed. I was a lively person, who laughed and enjoyed everything in her life, who couldn't wait for the weekend to come to see her boyfriend. Soon after starting taking Yasmin, everything changed. The panic attacks began, I cried for no reason I felt I was going crazy and nobody understood me. I really felt I was going nuts until this morning when my sister came to me and asked me which BCP I was taking. I answered that I was on yasmin and she said that my moods and my panic attacks and everything has an explanation. She then told me about a former colleague of hers who, in college, after taking Yasmin for several months threw a knife at her. Then I understood I was not crazy and that Yasmin are responsible for everything.

I don t want to lose my relationship, my parents, and friends because of some stupid pill that can ruin your life.

Thank you so much and once again congrats for this blog.
Kind regards,

Wednesday, July 24, 2013

Since taking Yaz I have now developed a vascular condition

Hi ladies,

I have been reading your post on the Yasmin and Yaz Survivor Forum and here on the Blog for some time and have joined to thank you all for your thoughts and contributions. 

The support and sentiments expressed here are so valuable when there is such little information forthcoming from doctors or the drug manufacturer.

Many women are having difficulty transitioning from Yaz and Yasmin birth control, and I have long suspected that the 'mild' anti aldosterone properties of drospirenone have an effect on the renin angiotensin aldosterone system for a number of months thereafter.

I have experienced constant tachycardia, blood pressure problems, back pain in kidney area, fluid retention, unbearable surges in adrenalin, muscle weakness, sensitivity with regards to my central nervous system, visible strong tremors in hands, lack of coordination, brain fog, hair loss, decreased urination and alternatively excessive urination, odd, random bouts of nausea that disappear as quickly as they appear, vision disturbances, tingling and twitching in extremities...bizarre.

My doctor has used words like 'you are stressed and anxious' to smother my concerns. I think we all know there's a bit of a stigma associated with researching health ailments online, but what's a girl to do when your practitioners are constantly being evasive? Making you feel like a giddy hypochondriac but at the same time putting you on a beta blocker? I smell a rat. How about you?

Since taking Yaz I have now developed a vascular condition (diagnosed by a doctor) that is likely to worsen over the course of my life. All this before the age of 30! Anxiety indeed.
I have no history of serious health problems, no history of heart or other diseases in my family or myself that may be contraindicated with birth control use, non-smoker, always had low blood pressure (even in my pregnancy), a long background of birth control use without complication, and extended breaks without birth control...no complication.

I think my health status is pertinent to note. Around the time I ceased taking Yaz my decline was very rapid and at one stage I was down to 44kg (99lbs)...an old work colleague of mine came to visit me at my worst and cried when she saw me. My quality of life was severely limited for approximately four months thereafter.

On a positive note we are now at seven months past and last week was my first week where I felt almost completely normal! Though the cynic in me feels that you can't be that sick without some long term battles...there were a few times there that I thought I might die.

Sending lots of love and light to you all.